IMMEDIATE ACTION NEEDED!

Click the link above to add your name to a petition to help prevent elimination of funding for Assisted Living choices. Click the ICF logo to view the ICF Advocates for Choice page.

Why doesn’t the HAA represent a full array of options?

This YouTube video explains the HCBS Access Act and what will happen to those individuals with the most profound and severe disabilities. Home and Community Based Services will be funded federally at 100%. ICF services will continue to be funded at 50%. States will then, in order to save money, close the ICFs, and there will be even fewer places for those with severe medical and behavioral issues, except jail, and a hospital room.

Explanation of HAA Video

VOR (Voice of Reason)  provided a very eloquent explanation of the concerns we share regarding this proposed bill. Click the link below to read the comments they sent to the authors of this bill:

VOR Comments & Concerns

What can you do?

  • Contact our US Senators and your US Representative (see contact information below).
  • Write letters to members of congress who are on committees that discuss this bill.
  • Join the A-Team in your state so you can help preserve a full array of disability services for those who cannot speak for themselves!

HAA: Home & Community Based Services Access Act

This proposed federal law, the Home and Community Based Services Access Act (the “HAA”) is now part of the “Build Back Better” Reconciliation bill that is working its way through Congress. It proposes to fully fund all Community Based housing of  four or less people, but could lead to states closing all large ICFs (Intermediate Care Facilities) and state centers (public Assisted Living Facilities for people under the age of 55) that provide the services many of our most severely disabled family members need. It will also lead to eventual closure of state funded nursing homes for the elderly. Although many of the components of this bill will help streamline access to residential care for people with disabilities, this bill discriminates against those who are the most severely disabled and depend on the specialized care and service that can only be provided in a larger facility. It also discriminates against people who prefer to live in a structured, apartment or campus-style living arrangement, where they can have better access to social activities and other benefits of apartment style Assisted Living.  The right to choose a congregate living facility is available to every US citizen except people with disabilities under the age of 55 and it is the most cost-effective and logical choice to help deliver desperately needed residential services to severely disabled people.

Senators Hassan, Casey, and Brown, and Representative Dingell, circulated a draft bill early in 2021 called the Home and Community-Based Services Access Act (the “HAA”).  A public comment period ended in April of 2021. The HAA is being portrayed as legislation that will help individuals with disabilities. Unfortunately, the way it is drafted, it will have a devastating effect on the men and women with the most significant intellectual and behavioral disabilities. The bill would end any requirement that states provide the services of ICFs (Assisted Living Centers) for individuals with intellectual disabilities. It would also create a strong financial incentive for all states to close all ICF/IIDs, both state operated and private. 70,000 men and women across the country have chosen to live in ICF/IIDs because they have found that these settings best meet their needs and preferences. All of these men and women would be forced to leave their chosen homes. If this bill passes without revision, it will take away the choices many families have made for their loved ones care. This bill has been included in the Reconciliation Bill.

 A-Team Minnesota is deeply concerned about this legislation because:

  • There is already an extreme shortage of residential options for people with disabilities. Many people are forced to live independently when it is not safe or reasonable for them to do so. Thousands of people are already homeless or incarcerated.
  • The aging parents and families of adult children with severe disabilities are left with few resources and support systems.
  • The civil right to choose where a person prefers to live is being taken from individuals with disabilities and their legal guardians. The vast majority of people in the US live in congregate housing and it is a widely acceptable and desired option, especially for Seniors.
  • Congregate Assisted Living options make the most financial sense, as well as provide a desirable option for many people with disabilities who need and want graduated levels of assistance, meal plans, medical care, social activities, transportation options, and numerous other advantages of Assisted Living.
  • The language of the HAA bill repeatedly uses refers to congregate housing for the disabled as “Institutional” and isolating. Congregate housing is NOT isolating. The terminology is archaic and derogatory, attempting to frame Assisted Living as a negative, undesirable choice.

If you are interested, here is a link to the draft text of this proposed legislation

https://www.revisor.mn.gov/bills/text.php?number=HF33&type=bill&version=2&session=ls92&session_year=2021&session_number=1

 

Senator Tina Smith         

(202) 224-5641                                   720 Hart Senate Office Building    Washington DC   20510                    https://www.smith.senate.gov/share-your-opinion 

Senator Amy Klobuchar

(202) 224-3244                                   425 Dirksen Office Building            Washington DC  20510                    https://www.klobuchar.senate.gov/public/index.cfm/email-amy

Contact Your Lawmakers!

 The single most important  thing you can do is let your lawmakers know how you feel and why the effects of these bills are personally important to you. EVERY VOICE COUNTS!                                                                                                                                                                                                                   

Hard copy letters and phone calls are particularly effective.  Emails help too, but can sometimes get directed to the wrong category and you might receive a form letter in response that is unrelated to the issue.                                                                                                                                                                                                            

Be sure to include your name, address, and contact information along with the name of your disabled loved one if you are contacting on someone else’s behalf. Lawmakers are elected to represent people in their own districts.                                                                                                            

However, it is also helpful to send letters to committee members who are actively working on these bills, even if they are not in your district. Hard copy letters work best for this.     

Not sure how to start?   Click this box for to see a sample letter!     https://ateamminnesota.com/sample-letter-to-lawmakers-and-agencies/           

Click this box to learn more about the 14c Special Wage Provision of the Fair Labor Standards Act and why it is so important.    https://img1.wsimg.com/blobby/go/ee900f84-8601-4a4d-9440-ba4c325a0ac2/downloads/MNFAC%20Report%2019%20January%202021.pdf?ver=1611167472164                                                                                  

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